Sughra was so excited about her proposed shopping expedition that she was waiting at the foot of the hill, dancing from foot to foot in her impatience. Gul Agha’s youngest brother, Najibullah, was hovering, his usual cheeky grin replaced by a look of anxiety. When told to get into the car his face split into a huge grin of delight.

Sughra’s father Baqul (which means old man, which he clearly wasn’t!) – the cook at the clinic
I said we’d leave soon but first I had to say hello to her mother and let her know we had Najibullah with us. Sughra’s face fell. ‘She’ll make you drink tea,’ she muttered. I promised I’d refuse.
The house was small, with just two rooms, both of which could fit easily into our living room at the clinic. The door opened directly into the first room – a kitchen and store. The second room provided the living and sleeping accommodation for the family of seven. A threadbare piece of what, once, had been a colourful gilim covered only part of the earth floor, while a small bundle of bedding in a corner constituted the entire furnishing of the room. On the one small, recessed shelf were stored a few medicines (no home was without a plastic bag of pills, syrups and tonics), embroidery materials and a small bundle of clothing.
Of his seven children, Baqul had only one son and he, like Annis one of his sisters, had Hurler Syndrome, a genetic disorder, once more commonly known as gargoylism. Neither child could talk or walk. Khudadad was a sociable child and would shake hands and smile when spoken to. There had been rejoicing at his birth, the longed for son. Even when it became obvious that he too suffered from the strange thickening of the tongue, the over large head, he was fussed over and petted and loved in a way his sister hadn’t been. Despite disappointing visits to every doctor and clinic for miles around, Baqul still hoped his son might be cured and could not accept that he would never be better. The entire family would have run naked through the streets to find a way to make their precious son normal.

Khudadad, who had Hunter Syndrome.
As soon as I paid my respects, refusing tea three times, I jumped in the jeep and we headed for the bazaar. I drove, Sughra perched excitedly on the passenger seat waving to everyone we passed, while Jon and Najib sat in the back. We were soon giggling at the expressions of amazed disbelief on the faces of everyone we passed on the way.
It was lunchtime when we reached Sangi Masha bazaar at lunchtime so Jon suggested kebabs at Sufi’s to fortify us for the serious business of shopping. The two children were soon tucking into soup, kebabs, rice and korma, concentrating on their food, without speaking a word, until they sat back with satisfied sighs.

A much more interesting route to the shops than I have now!
Although Sughra had never been shopping in her life she took to it like a duck to water, examining each of the bolts of cloth carefully, dismissing them, with a toss of her head, as being inferior to her needs. At the third shop Jon and Najib left us, bored with such feminine pursuits as looking for dress fabrics, and wandered off to do their own shopping.
Sughra and I visited each and every cloth shop until even I was becoming quite desperate. Finally, back in the first shop, she found what she was looking for – a bolt of purple velvet. She lovingly fingered the soft material, nodding with satisfaction, ‘This one.’ With a sigh of relief I asked the shopkeeper to cut the required length. While he was doing so, Sughra looked at me beseechingly, ‘Amina doesn’t have any nice clothes. Could I have an extra piece for her?’ She added earnestly, ‘She won’t need much, she is very small.’ I suggested we should buy some for her older sister too. Sughra’s eyes grew round, ‘But she is very fat!’ she exclaimed.

Fatima with her two youngest
Hugging her parcel, we wandered along the street. Sughra turned her attention to what other shops had to offer and soon we had a ball for her brother Khudadad, some luxury sweets and fancy hair grips. She was grinning all over her face by the time we met up with the others. Najib, totally disinterested in Sughra’s purchases, was overjoyed by the discovery of the bakery with its tempting choice of cakes and biscuits.
Jon had bought a patou, a large woollen shawl worn by men. Sughra, usually very shy with him, went into peals of laughter, eventually gasping between her giggles, ‘In barai zen ast! – It is for a woman! Pas bidi! – Give it back!’ We trouped back to the shop where Sughra soundly harangued the shopkeeper for selling Jon a woman’s chaddar before selecting something she considered more suitable.
As we were returning to the jeep, Jon was hailed by a huge, black bearded, turbaned, giant of a man, who threw his arms around him in a rib-cracking hug. Sayed was a truck driver and when Jon explained that I needed transport north, he agreed to take me along. Only, he was leaving in two days’ time!

Syed, the man who was going to take me north
Back in Sangsuragh, Sughra and Najibullah vied with each other to tell of all they had seen and done. Everyone seemed delighted that they had so enjoyed themselves.

A very happy Khudadad with his new ball and Annis with her doll.

Taken later, after Sughra’s purple dress was made
Somehow, everyone seemed to have already heard I was leaving for the north and almost the entire village turned out to say goodbye when, with promises that would I see them all after my travels, we drove away.

Last time I posted the wrong picture of Gul Agha and Latifa’s mum – there’s no mistaking where her daughter got her smile
Thank you again for a fascinating post. Hunters Syndrom is very sad.
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Thanks, John. Yes, Hunter Syndrome is an awful condition. And, of course, because their only son had it, poor Fatima was nearly always pregnant as they tried for a healthy son.
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Of course she was.
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Wonderful as always Mary and it strikes me that despite the Hunter’s syndrome and having so little, they still smiled.. What an amazing experience it was to be taken in to the heart of the community.. x
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Thanks, Sally. I do feel very privileged to have had that experience. They made me feel so welcome and they never made me feel like the rich foreigner who should help them.
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Isn’t it strange that we go to remote places with great beauty such as the scenery all around the people you were with, and shopping is just an everyday thing. To Sughra, it was like a trip to Disney World. I love the perspective you give about people’s lives and look forward to your next post.
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Thanks so much for your comment. Your description of the shopping trip being like a trip to Disney World to Sughra is spot on. It was a magical day for her and her joy in it was so infectious. The cloth sellers were highly amused by her disdainful shake of her head, though they hid their smiles and treated her as a valued customer. It was such a happy day out.
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I am always humbled reading these posts. Those people had so little, yet found such joy in small things. When I think of how much I consume without thought in a single year, it makes me feel ashamed.
You are bringing another world to life for us, Mary. I feel as if I am there.
Best wishes, Pete.
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Thanks, Pete. I loved that apart from the cloth for her dress, Sughra never asked for anything else for herself but small gifts for her brother and sisters. Until he received his ball, Khudadad’s only plaything was a large cotton reel.
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That Hunter Syndrome sounds terrible. I looked it up and confirmed it was genetic. I wonder if those two children are still alive as the research indicated such children die young. Very sad for them. It’s nice you could bring some joy to the family.
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Their mum and dad are first cousins, which probably increased the chances of some of the children having the condition. Even if Khudadad and Annis had short lives, they were much loved.
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This is random Mary, everyone had so much hardship in their lives… But they all smile so beautifully in the photos.💜
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Life was indeed pretty tough, Willow but they usually found something to feel happy and smile about.
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I love that, the less you have the happier you are 💜
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Pingback: Smorgasbord Blogger Daily – Thursday March 5th 2020 – #Legacy Sue Vincent, #Afghanistan 24 Mary Smith, #Weather Carol Taylor | Smorgasbord Blog Magazine
A lovely post, Mary and such beautiful smiles.. It always amazes me how the smiles come so much more readily from those who to us have so little to be thankful for in our eyes… It always humbles me… I love your stories… Xx
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Thanks, Carol. I’m sure you see the same thing in some places where you are 🙂 I’m so pleased you are enjoying the stories.
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I do Mary as many of the children in the villages don’t get to go to the towns… We have one of Lily’s friends stay sometimes and all she used to say when we took her out the first few times was wow wow and the look on her little face was just magic.. little pleasures bring so much joy…. Yes I love your stories very much and such lovely memories for you as well, Mary… Xxx
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Thank you very much for another interesting post, Mary! Its such a sad situation for all the people there, but they are looking so happy. Shame on our state leaders, which brought so much evil into their country. Michael
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Thanks for dropping in, Michael. I’m sorry if I have not always replied to your comments – I found some had gone into my spam folder! You are right to call shame on our leaders. And now, the ‘peace’ agreement signed by America and Taliban is being seen by Taliban as a great victory. They are saying when the US and other foreign soldiers leave Afghanistan they will take over again. The Afghan people, apart from Taliban, have been involved in this ‘peace’ agreement. My friends are very worried.
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Dont worry, Mary! Thank you for the information. I hope to have time reading your books about this. This “peace agreement” sounds very difficult for the people there. If i remember right, the same happend after the Soviets had left in the past. Lets hope there will be any possibility securing the citizens. Best wishes, Michael
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Yes, when the Soviets left the world turned its back on Afghanistan. If at that time efforts were put into rebuilding the country and restoring infrastructures then things may have been very different.
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So true, Mary! Some years in the past, a German journalist Peter Scholl-Latour predicted the leaving of the USA, without any solved problems. His statement was as clear as horrible: They are all criminals.
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I enjoyed this latest installment of your Afghanistan adventures.
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Thanks, Liz.
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I just ordered a copy of Drunk Chickens and Burnt Macaroni. I’m looking forward to reading it.
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Oh, thank you, Liz. I hope you enjoy it. It covers a period of time a few years later than my blog. I especially hope you enjoy meeting and getting to know some of my Afghan women friends.
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I’m looking forward to it!
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So wonderful to discover your bog and all your writings and photos of Afghanistan Mary, very interesting indeed. Will have a look out for your books on life there.
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Thanks so much for your lovey comment. I hope you’ll drop in again.
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Thank you Mary, will definitely do.
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Oh look at those beautiful smiles, despite the health worries. And such delight to go shopping…what a lovely post, Mary. I’ve missed a great deal, but I love that I can just pick right back up here with you 🙂 xxx
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Thanks, Sherri, glad you enjoyed it. I enjoyed remembering it 🙂 You are not so far behind – I’m on a truck going north at the moment!
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Ha…you are on some journey, Mary! 🙂
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Yes, indeed, Sheri! And what’s amazing is that since I’ve started writing about it on here Hazara people have been getting in touch with me, some of whom were babies (or not even born) when I was there.
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Oh that’s wonderful, Mary! The power of blogging, eh? ❤
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